http://www.facebook.com/arthursangels
Jackson is the featured Face of Arthritis.
I can't wait to get more involved with the local chapter of the Arthritis Foundation!!
2.26.2010
2.24.2010
Exciting things to come, I can feel it!!
I was recently, like yesterday!, introduced to a man named Tony Ward. Tony's official title is Community Development Director -Central Florida, Arthritis Foundation - Florida Chapter but I hope to one day soon call him my friend!
You see when Jackson was diagnosed with JA we were very overwhelmed. To be honest, I still feel that way some days. I can't speak for Patrick on that though. Anywho, I felt very alone. After our first appointment with Dr. Modica, I was lost in a world of medicine. Injections, liquids, pills, oh my! I wasn't sure what to do, or where to turn for help or guidance. My friend Jayme suggested that I find a local outlet for families that have children with arthritis. I already had the arthritis foundation website bookmarked on my laptop but I hadn't really looked at anything local. I even started a blog on blogger.com so that family and friends could follow our journey.
I started searching out groups here on FB and found a few, joined them, and left wall comments with my blog link, hoping that people would read it, and follow it, and maybe I could get some connections that way. And low and behold, I had an add request from a mom whose child has JA, only down fall, they live outta state. But I thought cool, some one that I can talk to about this that GETS it. Then just a few days ago, I got another add request from a mom and her family lives in Lakeland! Annnnnnnd they go to Shands too!! Well from there I was able to find the Arthur Itis FB page and that led me to Tony.
Tony and I were able to talk yesterday. Great things came from that talk. I am hoping to become involved in the mom squad, as Tony calls them. We're participating in the May 1st walk in Avalon Park and I am hoping to meet some of the moms I just added on FB
You see when Jackson was diagnosed with JA we were very overwhelmed. To be honest, I still feel that way some days. I can't speak for Patrick on that though. Anywho, I felt very alone. After our first appointment with Dr. Modica, I was lost in a world of medicine. Injections, liquids, pills, oh my! I wasn't sure what to do, or where to turn for help or guidance. My friend Jayme suggested that I find a local outlet for families that have children with arthritis. I already had the arthritis foundation website bookmarked on my laptop but I hadn't really looked at anything local. I even started a blog on blogger.com so that family and friends could follow our journey.
I started searching out groups here on FB and found a few, joined them, and left wall comments with my blog link, hoping that people would read it, and follow it, and maybe I could get some connections that way. And low and behold, I had an add request from a mom whose child has JA, only down fall, they live outta state. But I thought cool, some one that I can talk to about this that GETS it. Then just a few days ago, I got another add request from a mom and her family lives in Lakeland! Annnnnnnd they go to Shands too!! Well from there I was able to find the Arthur Itis FB page and that led me to Tony.
Tony and I were able to talk yesterday. Great things came from that talk. I am hoping to become involved in the mom squad, as Tony calls them. We're participating in the May 1st walk in Avalon Park and I am hoping to meet some of the moms I just added on FB
2.22.2010
No news is good news, right?
In this case yes! No news is indeed good news. It has been over a month since my last post and I apologize for that. Jackson has staredt the Humira and along with everything else he is on, he is doing so well! I can not express how much it makes me smile to see that he can run, walk, skip, and play without pain. He knows his limits but sometimes needs to be reminded to slow down otherwise he will feel it the next few days. I won't dare imply or even think that he is in any kind of remmission though, we have a follow up and infusion appointment on March 10th and then I will be able to talk about what stage he is.
If you aren't following this blog, do it! =)
I promise to update more often.
If you aren't following this blog, do it! =)
I promise to update more often.
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